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Listen 2 Us - Literacy, Self-Determination, and Interdependence for Nonspeakers

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Upcoming Events!


January 2019

January 11-12th

South Texas Special Needs Conference, Edinburg, TX

Screening with Q & A; Keynote on Building Inclusive Lives: Interdependence, Self-Determination & Advocacy

February 2019

February 6th

Thayer Academy Diversity Day

Screening & discussion; teach poetry workshop

February 7th 

SUNY/Brockport

Screening with discussion; Meet with Chief Diversity Officer

March 2019

March 11-15

CSUN Conference-California

Film screening & Discussion; Presentation on College Transition

March 28-29

ARC of North Carolina

Film screening with Q&A; Keynote and breakout session

April 2019

April 3-6

Vassar College Residency

Film screening with Q&A; Teaching (TBD)

April 9-11

USF-CARD-Tampa

Film screening with discussion; School visit

April 15-19

Oberlin College

Activities TBD

April 25

Harford Community College, Bel Air, Maryland

Film screening with Discussion

See Past Events


 

 

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Do you identify as nonspeaking? as nonverbal? both? or neither?

DJ:  I am nonspeaking. I am not nonverbal. In fact, I am highly verbal. I don’t use my body’s voice—my vocal chords—as my primary way of communicating. I think I will learn to talk, but I use other means to communicate because at this point it’s not easy for people to understand what I’m saying. I might look “dumb,” but I’m not. I’m just nonspeaking. Speech is assessed as not important by me because it uses a lot of my body, and I don’t have it all under control yet.  For now, I like to sign and to write my ideas. I am verbal. If I weren’t, I couldn’t be writing to you right now. I have a lot to say, and I use my written language to say it. I am verbal. I can message
my ideas but not say them  out loud. I am verbal.

So why is it important for people to quit equating nonspeaking to nonverbal?
DJ:  Nonspeaking doesn’t mean I have no ideas or no way to communicate them. Nonspeaking doesn’t mean I can’t learn to read or write like everyone else. But I can’t if you don’t teach me how. And calling me nonverbal is like saying I can’t learn to read and write. Sometimes I look sandy, but I’m not. (Sandy is a word I use to describe when I meditate in my mind and lose my language.) Assume you are me and you sanely learn to read and write. Not nonverbal.

People use the verbal/nonverbal binary a lot, particularly when it comes to autistics. How is that
binary used?

DJ: I think people use it to desert hope for nonspeaking people. It’s part of the idea of a spectrum or of a weeding out classification. And it’s unjust because it’s segregating my people into classrooms of easy lessons.

Read more...

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ASAN Harriet McBryde Johnson Award for Non-Fiction 2018 - Gala speech by DJ Savarese

Deej, an America Reframed documentary film received a 2017 Peabody Award!

WXXI - Connections: Discussing the Reel Mind Theatre and Film Series

  • Evan Dawson at Rochester, NY--Excerpt from panel discussion:

Being nonspeaking does not mean you’re nonverbal or unable to read and write. It just means that the complex motoric orchestration needed to utter words from our bodies takes longer to master. In the meantime, we have just as much right as anyone else—and perhaps a more urgent need-- to learn to read and write.” --DJ Savarese

Holland Bloorview Kid's Rehabilitation Hospital Bloom Blog:

  • Excerpt from the interview: The film Deej upends what you think you know about disability

BLOOM: What advice would you give to parents of a child who can’t speak, especially if they have an intellectual disability?

DJ Savarese: Visit my website at Listen2Us, and keep visiting it all summer as I finish it. Ask yourself how you can possibly know your child has an intellectual disability if you aren’t able to understand what they know. Try all kinds of communication with them: photographs, words, AAC, sign language.
Read to them a lot and ask them questions using answer banks. New ideas keep us from getting locked in our old ones.

BLOOM: Do you think we can learn from people who have intellectual disabilities? Is there value to all kinds of neurodiversity?

DJ Savarese: There is value in every person, but I reject the term "intellectually disabled." It's a figment of the ableist's limited—and limiting—imagination.

Psychology Today“Fresh Thinking on Autism: The Documentary Film “Deej” Challenges Us All to Live Inclusion” by Jason Tougaw

At its core, Deej asks viewers to be their dear selves, to become fresh thinkers, to mold the world free. I asked him in an interview what advice he has for people who want to advocate full inclusion: “Interdependence is my model. Make sure all members of the community feel needed. We all need to feel loved and included—not just nonspeaking kids. Ask yourself why sad selves can’t get free from anxiety. Learning is not hard, but it requires a sense of commitment. It’s not always easy, but we all love being a necessary part of something bigger than ourselves, and when we are, the community—and each of us—is better for it.”

 

 


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